Raising Disabled Children/ Parents of Disabled Children
All the research on disabled children indicates that they want to be treated like normal children in all respects except for the treatment of the nuisance called the disability.
Don't treat the child as a broken down poor soul doomed to a sad life, treat him as a highly dignified competent child who just happens to have a disability which is just a little nuisance to the pursuit of his life.
Try #362.4 at the library for books about children's disability organizations, #649.1511, HV1596 and RJ506 for books about raising disabled children.
php.com, parents helping parents; a resource guide for parents with children who have special needs.
acd.org.au, association for children with a disability
amazon.com/breakthrough-parenting-children-special-needs/dp/0787980811
associatedcontent.com/article/578313/parents_of_disabled_children_partner.html, support group.
assumption.edu/profilepics/donate-online/single-parents-of-disabled-children.html
autismtoday.com/articles/workandfamily.asp, employers aiding parents of disabled child.
babyzone.com/baby_toddler_preschooler_health/special_needs
bipolarmonster.rsitez.com, parents of kids with mental illness
cafamily.org.uk, contact a family, for families with disabled children
childparenting.about.com/cs/specialneeds
childrensdisabilities.info/parenting
children-special-needs.org
current.com/topics/88858236_parents-with-disabled-children
dcsf.gov.uk, department for children, schools
diane2emily.com, diane's resources for parents of disabled children
direct.gov.uk/en/caringforsomeone/caringforadisabledchild
disabilityworld.org
dmoz.org/society/disabled/children
eduguide.org/parents-library/special-needs-resources-for-siblings-396.aspx
eenet.org.uk/key_issues/parents/stories/dicag.shtml, disabled children's action group (dicag) south africa.
en.wikipedia.org/wiki/disabled_children's_computer_group
en.wikipedia.org/wiki/every_disabled_child_matters
everychildmatters.gov.uk/parents/parentknowhow/disabled, services for parents of disabled children
face2facenetwork.org.uk, befriending service for parents of disabled children.
families.com
families.com/blog/specialneeds
family-friendly-fun.com
gibbsmagazine.com/are_parents_responsible_for_disa.htm
henryspink.org
homeopathysnc.org, parent wisdom and the hope of cure and recovery for children with special needs.
hope.edu/academic/psychology/335/webrep2/parentdc.htm
intournet.co.il/yashar/07.htm, non-profit organization of parents of motor disabled children.
kerrlaw.com, attorney who represents the rights of disabled children and their parents against school districts in the areas of classification, program and placement.
ma-estateplanning.com/articles/article01.html
our-kids.org
parenting.com
parenting.com/article/child/developm ent/how-to-host-special-needs-friends
parentingchildrenwithhealthissues.com
parentingspecialneeds.org dmoz.org/home/family/parenting/special_needs_children/
parentingtipsforyou.com
parents.berkeley.edu/recommend/schools/ld_schools.html
parentingacomplexchild.blogspot.com
parentswithattitude.fsnet.co.uk
parenttoparentofga.org,, support group for georgia.
php.com, parenting journals.
questdiagnostics.com/kbase/shc/shc44.htm
rwjf.org/reports/grr/036234.htm, how to create a
safe, supportive home
sourceuk.net
spannj.org, statewide parent advocacy network of new jersey
specialneedsfamilyfun.com
specialneedsparenting.suite101.com
ssa.gov/kids/parent6.htm, kids and families: benefits for disabled children.
typeamom.net/mom-topics/special-needs-parenting.html
iparenting.com/channels/audience.php?type=special
ualberta.ca/ddc/icad/misplacedmercy/mmercycontents.html, misplaced mercy, a study of the prosecution and sentencing for parents who kill their disabled children.
upps.freeservers.com, united parents protesting singer, oppose peter singer's view that killing disabled infants is acceptable.
vpdca.org, vietnamese parents with disabled children
walthamforest.gov.uk/index/care/caringforcarers/parentsdischild.htm
watchtower.org/e/200604b/article_01.htm, raising children with special needs.
webmd.com/parents-of-disabledill-children
workingfamilies.org.uk
yourdayaway.com
Children's Disability Websites
What is sadder, people with handicaps or the people who put them down? Many disabled people are happy by themselves until the world comes in and tells them there's something wrong with them.
Parents have to work out a balance of the afflicted child with the other children in the family and also keep medical records while watching the finances.
Many of the mainstream groups like boy scouts, girl guides, YMCA, etc. make an attempt to include disabled children into their membership roster.
Try #362.4 at the library for books about children's disability organizations, #649.1511, HV1596 and RJ506 for books about raising disabled children.
Use this formula to find state agencies, disability and parent organizations:
nichcy.org/stateshe/**.htm
nichcy.org/stateshe/al.htm
nichcy.org/stateshe/tx.htm
sert.org, special equestrian riding, ride horses.
pathwaysawareness.org, pathways awareness foundation a not-for-profit organization dedicated to education for and about children with movement and physical challenges, and their families.
fcsn.org, federation for children with special needs
children-special-needs.org/parent.html, vision checklist for parents, teachers and friends
medicalhomeinfo.org, the national center of medical home initiatives for children with special needs, featuring a comprehensive a-z listing of health topics, resources available by state, tools, and resources.
nichcy.org/pages/home.aspx, the national dissemination center for children with disabilities, publications, resources, advocacy, facts and more about children's disabilities.
211.ca, helpline, 2-1-1 in canada.
airs.org, alliance of information and referral systems, national organization of local, regional, and state information and service providers.
211.org, telephone number that, where available, connects people with important community services and volunteer opportunities.
ability.com
ablelink.org
ablelink.org/public/default.htm, putting children and adolescents with specialized needs in touch with the world.
adapt-ability.com
ahherald.com/disabilities
dms.dartmouth.edu/koop/resources/chronic_illness, chronic illness resources for teens
4girls.gov/disability
fvkasa.org, youth with special health care needs speaking on behalf of themselves.
cdc.gov/ncbddd/kids, resources for children from 4th grade through high school, explore information about disabilities and health for kids.
ldonline.org/kidzone/kidzone.html, this is a site for children with learning disabilities that includes stories, articles and artwork from different kids and teens.
pages.prodigy.net/mattgreen, a place to share information for teens with crohn's disease, colitis, or ibs.
wowusa.com, wow empowers kids in wheelchairs by encouraging personal achievement through creative learning and expanded life experiences that lead to independent living skills.
airs.org/affiliates/aff_affiliateguide.asp, click here to view state airs affiliates..
bearabletimes.org, opens doors of communication and build bridges to connect children through education, health and technology resources.
beaverrun.org, pennsylvania camp for disabled kids.
bravekids.org
buildhouse.org, berkeley youth living with disabilities.
census.gov/hhes/www/disability/disability.html, disability statistics.
childrenshospitals.net
childrenscharities.org, children's charities of america.
childrensdefense.org, 800-cdf-1200
childrensdisabilities.info
childrensdisabilities.info
children-special-needs.org
childrenwithdiabetes.com
chmc.org/departmt/sibsupp, sibling support project.
comeunity.com/disability
ddrcco.com/states.htm, developmental disabilities.
dftoys.com
dftoys.com, 800-308-2208, toys for disabled kids.
disabilityresource.com
disabilityresources.org
drakemusicproject.org, enabling disabled children and adults to play conventional musical instruments.
dreamms.org
en.wikipedia.org/wiki/carers_and_disabled_children_act_2000
en.wikipedia.org/wiki/disabled_children's_computer_group
enablingdevices.com, 800-832-8697
eparent.com
equifriends.org, for disabled people.
familyvillage.wisc.edu
familyvillage.wisc.edu/comm/index.html, family village state resources
familyvoices.org, 888-835-5669, children with special healthcare needs.
familyvoices.org, family voices. is a national, grassroots clearinghouse for information and education concerning the health care of children with special health needs.
flametree.co.uk
funrsc.fairfield.edu/~jfleitas
getkidsgoing.com, helping to get disabled children into sport.
hometown.aol.com/lenore1231/myhomepage/index.html, children with congenital heart defects.
indie.ca/neads/moreneads
informcanada.ca, inform, national information and referral organization
ilru.org/html/publications/directory/index.html, centers for independent living.
irsc.org, special children.
kapablekids.com, 800-356-1564, learning materials.
kaplanco.com, 800-334-2014, products for disabled kids.
kayeproducts.com, products for kids.
ldanatl.org, learning disabilities.
ldonline.org/finding_help/local_org/locorg-help.html, ld online, click on your state's name to find the local chapters of helpful organizations and other available resources for learning disabilities
lehman.cuny.edu/faculty/jfleitas/bandaides, growing up with medical problems.
lookingglass.org
medem.com
modimes.org, march of dimes.
nami.org, 800-950-6264, national alliance for the mentally ill.
naric.com, 800-346-2742, rehabilitation information center.
nathhan.com, homeschooling special needs children.
ndmda.org, 800-826-3632, manic-depressive assn.
nichcy.org, 800-695-0285, children and youth with disabilities.
nichcy.org/states.htm#statelist, nichcy, learn about resources and service providers in your state through nichcy
nimh.nih.gov, 800-421-4211, institute of mental health.
nmha.org, 800-969-6642, mental health assn.
npnd.org, national parent network on disabilities.
nppis.org, 800-651-1151, parent to parent support and information system.
pacer.org, children.
pacifier.com/~mstephe, infantile refsum's disease.
parenttoparentnys.org, 800-305-8817
pfot.com, 800-pfot-124, therapy products and toys for developing motor skills.
php.com, parents helping parents.
rda.org.hk, riding for the disabled association of hong kong, horse riding.
reallifestories.com, stories focusing on real-life disabilities, diseases, and problems from a child's perspective.
sammonspreston.com, 800-323-5547, 800-665-9200, canada, products for kids.
schoolnet.ca/sne
sibs.org.uk, for brothers and sisters of disabled children and adults, a uk charity.
snow.utoronto.ca
specialneedsfamilyfun.com
specialolympics.org
starbright.org
tmoon.com/ks/ks,htm, klinefeleter's syndrome, xxy chromosome abnormaility.
ucando.org/kids.html, kids who focus on what they can do instead of what they can't.
uncnews.unc.edu/news/health-and-medicine/unc-study-chilling-hardship-rates-among-families-raising-disabled-children.html, raising disabled children is expensive.
usdoj.gov/crt/ada, americans with disabilities act.
vacterconnection.org, vacterl association, congenital disease.
vsarts.org/programs.html, very special arts, the international organization which offers art classes to disabled and non-disabled children and adults.
alt.education.disabled
alt.support.learning-disab
British Children's Disability Websites
cafamily.org.uk, contact a family, for families with disabled children.
whizz-kidz.org.uk, children's charity helping disabled children throughout the uk.
sharedcarenetwork.org.uk, carers of disabled children, respite care.
audit-commission.gov.uk/disabledchildren/parentfactsheet.asp, services for disabled children
edcm.org.uk, every disabled child matters.
dppi.org.uk, disability, pregnancy & parenthood international.
Major Children's Disability Organizations
Try #362.4 at the library for books about children's disability organizations, #649.1511, HV1596 and RJ506 for books about raising disabled children.
National Information Center for
Children & Youth With Disabilities
Pob 1492
Washington, Dc 20013
800-999-5599
800-695-0285
800-695-0285, Tdd.
202-884-8200
Fax: 202-884-8441
nichcy@aed.org
nichcy.org
National Parent Network
On Disabilities
1130 17th St. Nw
#400
Washington, Dc 20036
202-463-2299
npnd@cs.com
npnd.org
National Dissemination Center
for Children with Disabilities (NDCCD)
Pob 1492
Washington, DC 20013
(800) 695-0285
nichcy@aed.org
nichcy.org
The Arc of the United States
1010 Wayne Ave
#650
Silver Spring, MD 20910
301-565-3842
thearc.org
Information, support and advocacy for people with developmental
disabilities.
Easter Seals Disability Services
230 West Monroe Street
#1800
Chicago, IL 60606
312-726-6200
800-221-6827
easterseals.com
450 centers across the country offer a variety of services to help people with disabilities.
Family Voices, Inc.
2340 Alamo SE
#102
Albuquerque, NM 87106
505-872-4774
888-835-5669
familyvoices.org
Information and workplace information for families of children with special health care needs.
National Alliance for the Mentally Ill NAMI
2107 Wilson Boulevard,
#300
Arlington, VA 22201-3042
703-524-7600
nami.org
Offers "Special Needs Estate Planning Guidance System."
Parents Advocacy Coalition for Educational Rights (PACER)
8161 Normandale Blvd.
Minneapolis, MN 55437
(952) 838-9000
pacer@pacer.org
pacer.org
For children with disabilities.
Children's Disability Organizations
Try #362.4 at the library for books about children's disability organizations, #649.1511, HV1596 and RJ506 for books about raising disabled children.
Advocates for Children
151 W. 30th Street
5th Floor
Nyc 10001
212-947-9779
Fax: 212-947-9790
info@advocatesforchildren.org
advocatesforchildren.org
At&T National
Special Needs Center
800-468-4789
ssgroup.com
Information on products.
Autism Research Institute
4182 Adams Avenue
San Diego, CA 92116
(619) 281-7165,
autismresearchinstitute.com
The Family Village Waisman Center University of Wisconsin-Madison 1500 Highland Ave.
Madison, WI 53705-2280 familyvillage.wisc.edu
Resources to help parents and religious institutions integrate those with disabilities.
Parents Without Partners, Inc.
1650 South Dixie Highway,
#510
Boca Raton, FL 33432
561-391-8833
parentswithoutpartners.org
Education, support and social activities family and adult for single parents.
Sibling Support Project of the Arc of the United States
6512 23rd Ave NW
#213
Seattle WA 98117
206-297-6368
thearc.org/siblingsupport
Information and training to start a sibling support group.
Batten Disease Support and Research Association
2600 Parsons Avenue
Columbus, Oh 43207
800-448-4570
bdsra.org
Center for Children With
Chronic Illness & Disability
Box 721
420 Delaware St.
Minneapolis, Mn 55455
612-626-4032
Fax: 612-626-2134
Chicago Center for Family Health
445 E. Illinois
#651
Chicago, Il 60611
312-321-6040
ccfu@uchicago.edu
uchicago.edu
Clearbrook
2800 Central Road
Rolling Meadows, Il 60008
847-870-7711
Nonprofit group helps people with developmental disabilities.
Council for Disability Rights
205 W. Randolph
#1650
Chicago, Il 60606-1820
312-444-9484
312-444-1967 Tty
cdrights@interaccess.com
disabilityrights.org
Developmental Delay Resources
4401 East West Highway
#207
Bethesda, MD 20814
(301) 652-2263,
devdelay.org
Disabled Children's Relief Fund
402 Pennsylvania Ave.
Freeport, Ny 11520
516-377-1605
Fax: 516-377-3978
Helps poor, disabled kids.
Dolphin Research Center
Pob 522875
Marathon Shore, Fl 33052-2875
305-289-1121, Ext 232, Special Needs Program.
dolphins.org
Children and adults can play with the dolphins.
Dysautonomia Foundation
633 3rd Avenue
12th Floor
NYC 10017
212-949-6644
familialdysautonomia.org
Dream Factory
315 Guthrie Green
Louisville, Ky 40202
800-456-7556
502-584-3928
Grants dreams to disabled people.
Enabling Devices and Toys for Special Children
385 Warburton Avenue
Hastings-On-Hudson, Ny 10706
800-832-8697
914-478-0960
enablingdevices.com
Eric Clearinghouse On
Disabilities & Gifted Education
Council for Exceptional Children
1920 Assn. Dr.
Reston, Va 20191-1589
800-328-0272, Voice and Tty
703-264-9449, Tty
ericec@cec.sped.org
ericec.org
cec.sped.org
Exceptional Parent Magazine
555 Kinder Kamack Rd.
Oradell, Nj 07649-1517
800-372-7368
eparent.com
Family Resource Center On Disabilities
20 E. Jackson Boulevard
#300
Chicago, Il 60604
800-952-4199
312-939-3513
ameritech.net/users/frcdptiil/index.html
Special education law assistance.
Feldenkrais
336 Bon Air Center
#384
Greenbrae, Ca 94904
800-386-1441
415-464-0777
Fax: 415-464-0779
feldenkrais-intl.com
Holistic treatment.
Gesell Institute of Human Development
310 Prospect Street
New Haven, Ct 06511
203-777-3481
gesell.inst@worldnet.att.net
Workshops to recognize developmental maturity in children.
Health Care Services for Children With Special Needs
1025 Connecticut Avenue, Nw
#1100
Washington, Dc
202-466-8483
hscsn.org
Human Services Research Institute
2336 Massachusetts Avenue
Cambridge, Ma 02140
617-876-0426
Fax: 617-492-7401
hsri.org
Indiana Resource Center for Families With Special Needs/ Insource
809 North Michigan Street
South Bend, In 46601
800-332-4433
219-234-7101
insource.org
Institute for Therapy Through The Arts
6160 N. Cicero Avenue
Chicago, Il 60646
773-685-3911
musicinst.com
Art/ music therapy.
Kennedy Krieger Institute
707 N. Broadway
Baltimore, Md 21205
410-502-9400
410-502-9000
888-554-2080
Fax: 410-502-8471
410-502-9806, TTY
kennedykrieger.org
Medical and educational resource.
Kesbet-Jewish Parents of Children With Special Needs
3210 W. Dundee Road
Northbrook, Il 60062
847-205-0274
keshet.org
Life Planning Services
Future Planning for Persons With Disabilities
12406 N. 32nd Street
#102
Phoenix, Az 85032
602-404-4239
888-447-2525
Fax: 602-996-0944
lifeplanningservices.com
Mothers United for Moral Support
150 Custer Ct.
Green Bay, Wi 54301
414-336-5333
Support group for mothers of children with disabilities and those very ill.
National Assn. of Developmental Disabilities Councils
1234 Massachusetts Ave. Nw
#103
Washington, Dc 20005
202-347-1234
National Center for Education in Maternal and Child Health
Ncemch
2000 15th Street, North
#701
Arlington, Va 22201-2617
703-524-7802
ncemch.org
National Center for Youth With Disabilities
U. of Minnesota
420 Delaware St. Se
Box 721
Minneapolis, Mn 55455-0392
800-333-6293
umn.edu
Free resource library service.
National Father's Network
Kindering Center
16120 Ne 8th Street
Bellevue, Wa 98008-3937
425-747-4004, Ext. 218
Fax: 425-747-1069
fathersnetwork.org
National Foundation of Ectodermal Dysplasias
410 E. Main
Pob 114
Mascoutah, Il 62258-0114
618-566-2020
nfed.org
National Information Center for Children and Youth with Disabilities
Pob 1492
Washington, DC 20013-1492
800-695-0285
nichcy.org
National Legal Center for The Medically Dependent S
7 South 6th Street
#208
Terra Haute, In 47807
812-238-0769
Legal council for end of life issues.
National Maternal & Child Health Clearinghouse
2070 Chain Bridge Rd.
#450
Vienna, Va 22182-2536
703-821-8955
Fax: 703-821-2098
os.dhhs.gov/hrsa/mchb
circsol.com/mch
They will answer questions such as developmental disabilities in babies.
National Clearinghouse On Women
& Girls With Disabilities
Educational Equity Concepts, Inc.
114 E. 32nd St.
Nyc 10016
onisland.com/eec
National Information Clearinghouse On Children Who Are Deaf-Blind
Teaching Research
Northwestern Oregon State College
345 N. Monmouth Ave.
Monmouth, OR 97361
800-438-9376
800-854-7013, Tty
503-838-8756
tr.wou.edu/dblink
National Information Clearinghouse for
Infants With Disabilities & Life Threatening Conditions
Center for Developmental Disabilities
U. of South Carolina
Benson Bldg.
Columbia, Sc 29208
800-922-9234
800-922-1107
sc.edu
National Parent Network
On Disabilities
1600 Prince St.
#115
Alexandria, Va 22314
703-684-6763
National Rehabilitation Information Center/ Naric
1010 Wayne Avenue
Silver Spring, Md 20910-5633
800-346-2742
naric.com
National Youth
Crisis Hotline
800-448-4663
800-448-1833, Tdd
Parents Let's Unite for Kids
516 N. 32nd Street
Billings, Mt 59101
800-222-7585 Montana
406-255-0540
Fax: 406-255-0523
pluk.org
parenttoparentnys.org
800-305-8817
Support group for parents of children with disabilities.
Pathways Awareness Foundation
123 N. Wacker Drive
Chicago, Il 60606
800-955-2445
friends@pathwaysawareness.org
pathwaysawareness.org
Rehabilitation Institute of Chicago
345 E. Superior
Chicago, Il 60611
312-238-1000
rehabchicago.org
Sibling Support Project
Children's Hospital
Pob 5371/Cl-09
Seattle, Wa 98105-037 1
206-527-5712
seattlechildrens.org/sibsupp
Special Olympics International
1325 G Street, Nw
#500
Washington, Dc 20005-3104
202-628-3630
specialolympics.org
Special Recreation, Inc.
362 Koser Ave.
Iowa City, Ia 52246-3038
319-337-7578
Compendium of Special Recreation for People with Disabilities, book listing 1500+ recreation organizations for people with disabilities.
Shriners Hospital for Crippled Children
2900 Rocky Pt. Dr.
Tampa, Fl 33607
800-237-5055
813-281-0300
Fax: 813-281-8146
shriners.org
Wheelchair Sports Usa
3595 E. Fountain Boulevard
#L1
Colorado Springs, Co 80910
719-574-1150
wsusa@aol.com
wsusa.org
Williams Syndrome Association
Pob 297
Clawson, Mi 48017
248-541-3630
Fax: 248-541-3631
wsaoffice@aol.com
williams-syndrome.org
Parental Groups of Disabled Children
eparent.com, magazine for parents of children or young adults with disabilities.
peakparent.org
hometown.aol.com/specedparents, parent-2-parent for special students, parents of learning disabled students in the northwestern chicago area suburbs.
cashpcr.org, california parent councils for the retarded.
parenttoparentofga.org, parent to parent of georgia. support group for parents of disabled children
pages.ivillage.com/okparentnetwork, oklahoma parent e-network, uniting families of disabled children.
Online Support Groups for Parents of Disabled Children
groups.aol.com
groups.aol.ca
ivillage.com, Select Message Boards/ Parenting and Pregnancy
todaysparent.com, Select Talk Forums
yahoogroups.com
yahoogroups.ca
Respite Care For Disabled Children
Respite services are often used for children, adults and seniors with medical problems and disabilities. The caretaker takes the person to the respite care facility where they stay overnight anywhere up to several weeks.
A caregiver can come to the person's house and take over caregiving for anywhere from a day to several weeks.
It's a chance for the parents or the caregivers to take a break from constantly caring for their dependents.
Adult daycare or special needs daycare is a place somebody goes just for several hours throughout the day.
Britain is much more advanced than North America in providing respite care services.
easterseals.com
wrightslaw.com
adopting.org/adoptions/respite-care-for-adoptive-parents.html
adoption.com/parents/respite-care.html
childrenandfamily.org/more/respitecare.htm, children and family resource center of henderson county.
juf.org/interactive/video.aspx?id=27022, camp for families with disabled children, chicago, il.
irissoft.com/oasis, oasis online resource directory
childrensaidsociety.org
cornerstonehouse.org/respite.html, residential care for the developmentally disabled.
freewebs.com/bromrespite/
health.state.ny.us/nysdoh/child/special_needs/resource_directory.htm
parenttoparentofga.org/roadmap/childcare/respitecarecover.htm
hillsboroughkids.org/pdfs/respiteapplicationrevised3.pdf, in-home respite care program for families with developmentally disabled children.
kidshome-vent.org/respite.html
lgcplus.com/news/2008/03/respite_breaks_for_parents_of_disabled_children_signalled.html
licckids.org/respite2.html, respite care of houma, a crisis/emergency shelter for disabled and homeless children.
medscape.com/medline/abstract/15715696, how do carers of disabled children cope? the ugandan perspective.
mencafepsrilanka.com/respite.html, respite care cottage for multiple disabled children.
respitecaresa.org
wmoore.net/therapy.html, camp sunshine, in casco, provides a respite for children with life threatening illnesses.
wrightslaw.com
ARCH National Respite Network
Chapel Hill Training-Outreach Project, Inc.
800 Eastowne Drive,
#105
Chapel Hill, NC 27514
919-490-5577
respitelocator.org
National respite locator service and national coalition that advocates for respite services.
British Respite Care for Disabled Children
Britain has a much more advanced respite care infrastructure than any other country in the world.
No comments:
Post a Comment